Privacy Policy
Patient Connect, LLC (“Patient Connect,” “we,” “us,” or “our”) respects your privacy and is committed to protecting the personal information you share with us through our website, forms, communications, patient advocacy services, research recruitment activities, and related services.
This Privacy Policy explains what information we may collect, how we use it, when we may share it, and the choices available to you.
1. Information We May Collect
We may collect information that you voluntarily provide to us, including:
- name
- email address
- telephone number
- date of birth or age
- location information you choose to provide
- health-related information
- medical condition or diagnosis information
- research interests
- information submitted through screening or eligibility forms
- information related to clinical trial or medical market research opportunities
- information related to life coaching inquiries
- communications you send to us
- payment or compensation-related information where applicable
Patient Connect’s current website states that patients may provide contact information, health-related information, research interests, and other information for research recruitment, screening, participation communications, and compensation-related purposes.
We may also automatically collect limited technical information when you use our website, such as browser type, device information, IP address, pages viewed, referring pages, and website interaction data through cookies or similar technologies.
2. How We Use Your Information
We may use personal information to:
- respond to inquiries
- evaluate potential eligibility for research opportunities
- connect individuals with clinical trials or medical market research opportunities
- conduct preliminary screening and recruitment activities
- communicate about current or future studies
- coordinate research participation
- provide study-related updates and reminders
- support patient advocacy activities
- provide information about Patient Connect services
- schedule consultations or life coaching discussions
- provide customer service and support
- process or coordinate participant compensation where applicable
- maintain records and improve our services
- comply with legal or regulatory requirements
- protect the security and integrity of our website and services
The website describes Patient Connect as connecting patients with research opportunities and providing advocacy, recruitment, and related patient support.
3. Health-Related Information
You may choose to provide health-related information when expressing interest in a research opportunity, completing a pre-screening form, communicating with Patient Connect, or requesting support.
We use this information only for legitimate purposes related to research recruitment, preliminary eligibility assessment, patient advocacy, communications, and related services.
Providing information to Patient Connect does not guarantee eligibility for any clinical trial, research opportunity, or program.
Participation in any research opportunity is voluntary.
4. Research Recruitment and Screening
Patient Connect may use information you provide to help determine whether you may be a potential candidate for a clinical research opportunity.
We may communicate with you regarding:
- study opportunities
- eligibility questions
- screening
- scheduling
- study updates
- participation reminders
- research-related support
- compensation-related communications
Patient Connect’s website expressly states that information may be used to determine potential eligibility and coordinate research participation.
Final eligibility for any clinical research study is determined by the applicable study team, research site, sponsor, or investigator.
5. Email, Telephone, and SMS Communications
If you voluntarily provide your contact information, you may receive communications from Patient Connect by:
- telephone
- SMS/text message
- other electronic communication methods you request or authorize
These communications may relate to research opportunities, study invitations, eligibility and screening, scheduling, study reminders, support, account notifications, compensation, and occasional promotional information about research opportunities.
Message frequency may vary.
Message and data rates may apply.
You may reply STOP to an SMS message to opt out of text communications.
You may reply HELP for assistance.
Consent to receive marketing or promotional SMS messages is not a condition of participating in a research opportunity or purchasing any goods or services.
6. How to Opt Out
For SMS communications, reply:
STOP
You may withdraw your consent to future communications at any time.
For email or general communication requests, contact:
scoates@patientstudyconnect.com
You may use the subject line:
OPT OUT
Patient Connect’s website currently provides these opt-out instructions.
Certain communications that are reasonably necessary to administer an active research study may still be provided where appropriate or required.
7. How We May Share Information
We may share information when reasonably necessary with:
- research sites
- clinical investigators
- research sponsors
- contract research organizations
- medical market research organizations
- service providers supporting our website, forms, communications, scheduling, or business operations
- professional advisers
- government or regulatory authorities when legally required
We do not sell personal information for third-party marketing purposes.
Mobile opt-in information and SMS consent information will not be sold or shared with third parties for their own marketing or promotional purposes. This reflects the privacy statement currently published on the Patient Connect website.
8. Service Providers
We may use third-party service providers to help us operate our website and services, including form providers, communications platforms, hosting providers, scheduling tools, analytics providers, and similar vendors.
The current Patient Connect contact and coaching pages use externally hosted forms.
These providers may process information on our behalf subject to their own terms and applicable agreements.
9. Cookies and Analytics
Our website may use cookies and similar technologies to:
- remember preferences
- understand website traffic
- improve website performance
- measure engagement
- maintain website security
You may be able to manage cookies through your browser settings or through any cookie preference controls available on the website.
10. Information Security
We take reasonable administrative, technical, and organizational measures designed to protect personal information from unauthorized access, disclosure, misuse, alteration, or loss.
However, no website, electronic transmission, or storage system can be guaranteed to be completely secure.
11. Data Retention
We may retain personal information for as long as reasonably necessary to:
- provide requested services
- manage research recruitment and screening
- maintain communication preferences
- fulfill contractual or legal obligations
- resolve disputes
- maintain appropriate business records
Retention periods may vary depending on the type of information and the purpose for which it was collected.
12. Your Privacy Choices and Rights
Depending on where you live, you may have rights concerning your personal information, such as the right to:
- request access to personal information
- request correction of inaccurate information
- request deletion of certain information
- request information about how your information is used
- withdraw consent for certain communications
- opt out of certain uses or disclosures
To submit a privacy request, contact:
scoates@patientstudyconnect.com
We may need to verify your identity before completing certain requests.
13. California Privacy Rights
Patient Connect operates in San Diego County, California.
California residents may have additional privacy rights under applicable California law.
Where legally required, California residents may request information regarding categories of personal information collected, disclosed, or otherwise processed and may exercise applicable rights relating to access, correction, deletion, or certain uses of personal information.
Patient Connect does not sell personal information for third-party marketing purposes.
14. Children's Privacy
Patient Connect’s services are not intended to knowingly collect personal information from children without appropriate authorization.
If you believe a child has submitted personal information improperly, please contact us so we can review the matter.
15. Third-Party Links
Our website may contain links to third-party websites, research organizations, clinical study resources, or other services.
Patient Connect is not responsible for the privacy practices of third-party websites.
Please review their privacy policies before submitting personal information.
16. Clinical Research Disclaimer
Information provided through Patient Connect is intended to support research recruitment, patient education, advocacy, and communication.
Patient Connect does not guarantee eligibility for a clinical trial or research opportunity.
Participation is voluntary.
Research-related medical decisions should be discussed with the applicable study team and your qualified healthcare providers.
17. Changes to This Privacy Policy
We may update this Privacy Policy from time to time.
When changes are made, we may update the “Last Updated” date at the top of this page.
18. Contact Us
Patient Connect, LLC
San Diego County, California, United States
Email:
scoates@patientstudyconnect.com
Telephone:
(760) 420-3403
Website:
Patient Connect